CYSTIC FIBROSIS I am the doctor for your hospital and have prepared the following paper for you to look at and possibly use. It includes information on what cystic fibrosis really is, what treatments there are, what you two can do for your child, and how it is inherited. I hope this document is useful to you in your incoming struggle against this horrible disease.
It is good to know that you are not alone. Every day four children in the United States are diagnosed as having cystic fibrosis. Cystic Fibrosis is the most common inherited disease among Caucasian. Approximately one out of every two thousand Caucasian babies is born with it. I am sorry that this news has to be bad, but it is important that you have all the information you can. Of the four thousand diseases that are known to be inherited from our parents, cystic fibrosis is the number-one killer.
CFTR cartoon from 1989 Journal of NIH Research, de...
English: "Clubbing" of the fingers is a classic fe...
Cystic fibrosis manifestationsEach day three people die from it. Despite this bad news, CF is no longer the nearly automatic death sentence it used to be. Improved treatments are allowing more than half of the people with CF to live into their mid-twenties, and some are already in their forties, fifties, and even sixties. It will be very important for you t frequently check with doctors for new medical advancements. More and More discoveries are made every day and one of them very well might be able to help you situation.
You cannot catch cystic fibrosis from someone who has it. It is not a contagious disease, cut a hereditary or inherited one. A child but be born with it to have the disease. The symptoms usually begin at an early age, but they last throughout an entire lifetime.
The problems in CF start with thick, sticky mucus...